I think disability rights advocates had better watch this project.
Global Burden of Disease (GDB) Project:
PROVIDING INFORMATION IN A WAY THAT IS MAXIMALLY USEFUL FOR FUNDERS AND POLICY-MAKERS
It is a project going on since last fall in the Institute for Health Metrics and Evaluation that the University of Washington newly opened by dint of its history’s [...]
Archive for April, 2008
Global Burden of Disease Project
Posted in information, tagged burden assessment, disability, disease, global health, IHME, philanthrocapitalism, the Gates foundation, The Lancet, the University of Washington on April 25, 2008 | Comments Off
Precedent-setting ruling in Illinois: sterilization bid denied
Posted in information, tagged advocacy, ethics, medical decision-making, mentally disabled, sterilization on April 19, 2008 | Comments Off
I’m so glad to know this news. A three-judge panel of the Illinois Appellate Court unanimously ruled Friday against the bid to sterilise a 29-year-old mentally disabled woman.
Her legal guardian, her aunt, wanted to have her tubal ligated because ”her neice had had a bad medical reaction to other birth-control methods.”
“Tubal ligation is a particularly drastic means of preventing [...]
There was a lot more going on than the hospital’s building purchase
Posted in Ashley's father, Money, the special ethics committee, tagged Ashley treatment, Ashley X, disabilities, ethics, growth attenuation, pillow angel on April 19, 2008 | Comments Off
In the post, “Facts about the Seattle Hospital and Money,” I pointed out the long and close relationship between the Seattle Children’s Hospital and the University of Washington and the Bill & Melinda Gates Foundation. Especially the fact that the hospital was getting ready for the purchase of two downtown buildings with the money collected [...]
Mysteries and questions about the doctors’ medical paper
Posted in Dr. Diekema's explanation, The doctors' medical paper, tagged Ashley X, disabilities, ethics, growth attenuation, pillow angle on April 11, 2008 | Comments Off
What follows are some of the major mysteries and questions the research of this blog has found out in the medical paper Dr. Gunther and Dr. Diekema wrote on this case: Attenuating Growth in Children With Profound Developmental Disability; A New Approach to an Old Dilemma, Arch Pediatr Adolesc Med. 2006;160:1013-1017. I am going to [...]
Dr. Diekema was not chair, it was not an IRB
Posted in Dr. Diekema's explanation, the special ethics committee, tagged Ashley treatment, ethics committee, disabilities, growth attenuation, IRB, ethics consultation, safeguards on April 3, 2008 | Comments Off
Many people may believe that Dr. Diekema was chair of the special ethics committee that discussed Ashley’s case on May 5, 2004. But that is, like the “40-member committee” notion, widely shared misinformation.
Ashley’s father writes in his blog, “The committee chairman along with Doctor Diekema, ethics consultant, conveyed the committee’s decision to us” when [...]
