Deikema told CNN the ethics committee recognized that Washington state law was not perfectly clear with regard to whether a court order would be necessary to do the hysterectomy in someone who could not consent to the procedure. (CNN, May８, 2007)
One of those authors, Dr. Doug Diekema, the hospital’s primary ethics consultant on the case, said [...]
Archive for March, 2009
What Dr. Diekema spoke and wrote right after the joint press conference of May 8, 2007
Posted in Dr. Diekema's explanation, information, investigation, the WPAS report, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, ethics, growth attenuation, hysterectomy, medical ethics, pillow angel, WPAS on March 27, 2009 | Comments Off
Did the hospital back down on the agreement with WPAS?
Posted in investigation, the WPAS report, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, ethics, growth attenuation, hysterectomy, medical ethics, pillow angel, safeguards, Seattle Children's, WPAS on March 20, 2009 | Comments Off
I have pointed out here that the Seattle Children’s Hospital agreed with WPAS on May 8, 2007 that they would “develop, adopt and implement a policy prohibiting growth-limiting medical intervention for individuals with developmental disabilities unless Children’s has received a valid order form a court of competent jurisdiction, not subject to appeal, authorizing such intervention [...]
Links 4: May 2007; illegality admission, WPAS investigation, symposium
Posted in information, tagged Ashley treatment, Ashley X, bioethics, breast bud, breast bud removal, disabilities, disability rights, ethics, growth attenuation, hysterectomy, medical ethics, pillow angel on March 19, 2009 | Comments Off
Joint press conference by the hospital and WPAS (May 8, 2007)
The hospital press release
http://seattlechildrens.org/home/about_childrens/press_releases/2007/05/002039.asp
The WPAS investigative report
http://www.disabilityrightswa.org/news-1/Investigative%20Report%20Regarding%20the%20Ashley%20Treatment.pdf
The executive summary of the report
http://www.katrinadisability.info/Investigative%20Report%20Regarding%20the%20Ashley%20Treatment_Executive%20Summary.pdf
WPAS Web site
http://www.wpas-rights.org/
the WA state regulation for the quality improvement committee
http://apps.leg.wa.gov/RCW/default.aspx?cite=70.41.200
News articles
http://www.komonews.com/news/7394011.html
(KOMO)
http://seattletimes.nwsource.com/html/localnews/2003698112_webchildrens08m.html?syndication=rss
(Seattle Times)
http://seattletimes.nwsource.com/html/localnews/2003699286_childrens09m.html
(Seattle Timse)
http://seattletimes.nwsource.com/html/editorialsopinion/2003700209_ashleyed10.html
(Seattle Times, Editorial)
http://seattletimes.nwsource.com/html/opinion/2003708123_wedlets16.html?syndication=rss
(Seattle Times, Letters to the Editor)
http://seattlepi.nwsource.com/health/314810_ashley09.html
(Seattle Post-Intelligencer)
http://edition.cnn.com/2007/HEALTH/05/08/ashley.ruling/index.html
(CNN, Amy Burkholder)
http://www.msnbc.msn.com/id/18557604
(MSNBC）
http://www.foxnews.com/story/0,2933,270782,00.html
(FOX)
http://www.washingtontimes.com/news/2007/may/09/20070509-112515-7056r/
(AP）
http://www.thestar.com/article/212230
(Toronto Star, Helen Henderson)
Blogs
http://bioethicsdiscussion.blogspot.com/2007/05/more-on-ashley-no-due-process.html
More on Ashley: No [...]
Links 3: the early stage of the controversy; blog articles
Posted in information, tagged Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics, growth attenuation, medical ethics, pillow angel on March 19, 2009 | Comments Off
Helping families care for the helpless
George Dvorsky, Sentient Developments, November 6, 2006
(the ”grotesque” remark quoted in the father’s blog)
A Disability Community’s Response to the Ashley Treatment #
beginning on January 17, 2007
Sigh #
Disability Studies, Temple U. January 5
Modify the System, Not the Person #
Disability Rights Education & Defense Fund , January 6
Not Dead Yet Statement on the “Growth Attenuation” [...]
Behind the tightly closed door of the special ethics committee
Posted in the special ethics committee, tagged Ashley, Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, ethics, ethics committee, growth attenuation, hysterectomy, involuntary sterilization, mastectomy, medical decision-making, medical ethics, mentally disabled, pillow angel, Seattle Children's, University of Washington on March 8, 2009 | Comments Off
I have recently posted two entries of links to information in the very early stage of the controversy. They will be followed by more. Some articles and stories among them carry very important pieces of information, maybe even crucial to understand this case. Here is one that I recommend anybody seriously interested in this case to [...]
Links 2: the early stage of the controversy; news stories without comments by the involved
Posted in information, tagged Ashley, Ashley X, bioethics, breast bud removal, disabilities, disability rights, ethics, growth attenuation, hysterectomy, involuntary sterilization, mastectomy, medical decision-making, medical ethics, pillow angel on March 5, 2009 | Comments Off
News stories in general
January 4, 2007
http://www.cbsnews.com/stories/2007/01/04/health/main2332076.shtml?source=RSSattr=Health_2332076 （AP, Comments by Frader and Caplan）
http://archives.cnn.com/TRANSCRIPTS/0701/04/ng.01.html （CNN, Nancy Grace：Brosco, Hughes）
http://www.timesonline.co.uk/tol/news/article1289216.ece (Times、quotes from Dvorsky）
http://www.guardian.co.uk/world/2007/jan/04/health.topstories3 （Guardian: comments by Caplan, info about hormone therapy cost）
http://www.timesonline.co.uk/tol/comment/article1289260.ece （readers’ debate on the Times）
January 5
http://edition.cnn.com/HEALTH/blogs/paging.dr.gupta/2007/01/stunting-growth-in-whose-best-interest.html （CNN, Sanjey Gupta’s Blog）
http://news.bbc.co.uk/2/hi/health/6234601.stm (BBC)
January 10
http://www.cbsnews.com/stories/2007/01/09/blogophile/main2340418.shtml (CBS)
January 12
http://edition.cnn.com/TRANSCRIPTS/0510/19/pzn.01.html （CNN, Paula Zahn Now）
February 5
http://www.ama-assn.org/amednews/2007/02/05/prsa0205.htm
（AMA News, comment by Brosco）
———————
News Stories about the [...]
Links １: the early stage of the controversy; the first hand information and comments from the involved
Posted in information, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, Dr. Diekema, ethics, growth attenuation, hysterectomy, involuntary sterilization, mastectomy, medical decision-making, medical ethics, pillow angel on March 3, 2009 | Comments Off
This is the first post of the series of links from the research file of this blog. Information in the posts of this link series may be added at any time.
2006
http://archpedi.ama-assn.org/cgi/content/full/160/10/1013 （Gunther & Diekema paper）
http://archpedi.ama-assn.org/cgi/content/full/160/10/1077 （the editorial by Brosco, et.al）
http://www.msnbc.msn.com/id/15517226/ (Reuters）
http://www.inclusiondaily.com/archives/06/11/02/110206waashley.htm （Inclusion Daily Express）
January, 2007
http://ashleytreatment.spaces.live.com/blog/ （Parents’ blog）
http://articles.latimes.com/2007/jan/03/nation/na-stunt3（the newsbreak, F, G）#
http://www.thestar.com/printArticle/169916 （by Helen Henderson, the Toronto Star, D, a [...]
