The other day, I was revisiting the blog started by Ashley’s father in search for some information unrelated to the subject of this entry, and my attention was drawn to a part. I hadn’t heeded that part much so far. But just after reading the legal paper written by Christine Ryan, I was intrigued by [...]
Archive for the ‘Ashley's father’ Category
Revisiting the father’s blog: his unique interpretation of law and Ryan’s article
Posted in Ashley's father, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, ethics, growth attenuation, hysterectomy, involuntary sterilization, medical ethics, pillow angel on October 26, 2009 | Comments Off
A legal article says that courts should take new standards and approve the “Ashley Treatment” because the therapy can be more important than non-person’s fundamental rights
Posted in Ashley's father, Dr. Diekema's explanation, generalization of growth attenuation, information, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, Dr. Diekema, ethics, growth attenuation, hysterectomy, involuntary sterilization, mastectomy, medical ethics, parental decision making, pillow angel on October 10, 2009 | Comments Off
I know Peter Singer’s assertion that children with profound mental disabilities are not entitled to “moral status”. I remember Dr. Diekema argued defending the Ashley case that Ashley is not entitled to the same dignity as others are because she is just like a baby. Now I’m shocked to read a paper written by a [...]
The Seattle Children’s and the Gates Foundation are hand in hand as “global health leaders”
Posted in Ashley's father, Dr. Diekema's explanation, Money, generalization of growth attenuation, the special ethics committee, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, ethics, growth attenuation, hysterectomy, involuntary sterilization, medical ethics, pillow angel on September 5, 2009 | Comments Off
According to this article of April 24, 2009 on the Medical News Today, the Seattle Children’s Hospital and the Gates foundation are hand in hand as “global health leaders” in an effort to eliminate prematurity and still births. The article is about a big international conference in Seattle, sponsored by the Global Alliance to Prevent [...]
Mysteries and questions surrounding the Katie Thorpe case
Posted in Ashley's father, Dr. Diekema's explanation, information, the media, tagged Alison Thorpe, Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics, growth attenuation, hysterectomy, involuntary sterilization, Katie Thorpe, medical decision-making, medical ethics, mentally disabled, parental decision making, pillow angel, the Katie case on April 20, 2009 | Comments Off
Many people may think that the Katie Thorpe case in UK is an isolated episode, though it was strongly influenced by the preceding Ashley case. Many may also believe that Alison Thorpe, Katie’s mother appeared in the media for the first time in October 2007 when her request for Katie’s hysterectomy was reported. Actually, Alison had been [...]
What about conflicts of interest in ethics committees?
Posted in Ashley's father, Dr. Diekema's explanation, Money, investigation, the special ethics committee, tagged Ashley, Ashley treatment, Ashley X, bioethics, desabilities, disability rights, ethics, ethics committee, ethics consultation, growth attenuation, medical decision-making, medical ethics, pillow angel on January 30, 2009 | Comments Off
The growth attenuation working group’s opinion goes that there’s no need for physicians to seek court review because a hospital ethics committee with a variety of members will be good enough for consideration of a parental request for growth attenuation. That reminds me of the Biederman/Nemeroff scandals that have been going on for the last [...]
Ashley’s father’s plan to promote “the Ashley Treatment”
Posted in Ashley's father, Dr. Diekema's explanation, generalization of growth attenuation, information, tagged Ashley, Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics committee, growth attenuation, pillow angel on January 30, 2009 | Comments Off
In the December 31, 2007 update of his blog, Ashley’s father revealed what he was considering to do to promote “the Ashley Treatment” for the quality of life of other Pillow Angels in the world.
・ He asks “pioneering parents” who want to do the same as they did to contact them through e-mail for information exchange. They are willing [...]
The two distinctive groups of defenders (additional info)
Posted in Ashley's father, Dr. Diekema's explanation, Uncategorized, tagged Ashley treatment, Ashley X, bioethics, desabilities, disability rights, ethics, growth attenuation, pillow angel on January 21, 2009 | Comments Off
Visit this page of the Treuman Katz Center for Pediatric Bioethics at the Seattle Children’s and see who were invited last year as guest speakers for bioethics seminars. These seminars are totally different occasions from the pediatric bioethics conferences mentioned in my previous post.
Norman Fost for the October 2 seminar.
Joel Frader for the June 5 [...]
The two distinctive groups of defenders
Posted in Ashley's father, Dr. Diekema's explanation, Uncategorized, tagged Asahley treatment, Ashley X, bioethics, desabilities, ethics, growth attenuation, pillow angel on January 19, 2009 | Comments Off
While harshly criticized by many, the decision by Ashley’s parents and the special ethics committee of the hospital was also strongly defended by some professionals. I imagine that’s how people remember the controversy two years ago. But were those defenders all really unbiased or uninterested “professional”s? Reviewing who they are, I find two distinctive groups [...]
The connotation of CNN’s question; Will you consider revealing your identity?
Posted in Ashley's father, the special ethics committee, tagged Ashley treatment, Ashley X, bioethics, disabilities, disability rights, growth attenuation, pillow angel on December 26, 2008 | Comments Off
In the email interview with Ashley’s parents this March, CNN asked “Will you consider revealing your identity?”
CNN interviewed Dr. Diekema right in the middle of the heated controversy at the beginning of 2007. They also sent written questions to the parents and got their answers, some of which were introduced in the Larry King Live [...]
When did the father decide the treatment should be made widely available?
Posted in Ashley's father, The doctors' medical paper, tagged Ashley treatment, Ashley X, bioethics, breast bud, disabilities, disability rights, ethics, growth attenuation, medical decision-making, medical ethics, pillow angel, Seattle Children's, sterilization, University of Washington on December 25, 2008 | Comments Off
One of the questions I have been considering since the news break two years ago. When did the father decide that it would be a good idea to promote the treatment widely and make it available for other children like Ashley?
As is obvious in the title of his blog, Ashley’s father is trying to [...]
