I know Peter Singer’s assertion that children with profound mental disabilities are not entitled to “moral status”. I remember Dr. Diekema argued defending the Ashley case that Ashley is not entitled to the same dignity as others are because she is just like a baby. Now I’m shocked to read a paper written by a [...]
Archive for the ‘generalization of growth attenuation’ Category
A legal article says that courts should take new standards and approve the “Ashley Treatment” because the therapy can be more important than non-person’s fundamental rights
Posted in Ashley's father, Dr. Diekema's explanation, generalization of growth attenuation, information, tagged Ashley treatment, ethics, bioethics, parental decision making, pillow angel, disabilities, disability rights, growth attenuation, hysterectomy, Ashley X, involuntary sterilization, Dr. Diekema, breast bud removal, mastectomy, medical ethics on October 10, 2009 | Comments Off
Growth attenuation therapy in Australia?
Posted in generalization of growth attenuation, information, tagged Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics, growth attenuation, medical ethics, pillow angel on October 1, 2009 | Comments Off
A law firm newsletter in Australia has done a detailed legal analysis on growth attenuation for disabled children because “there is anecdotal evidence that such requests by parents may be increasing.”
http://hwlebsworth.ensoconsultancy.com.au/health_sept09/growth-attenuation-therapy.html
They advise doctors to consider its ethical appropriateness cautiously and warn them not to agree to provide the therapy without the proper legal procedures to [...]
UW Disability Studies Program symposium “Eugenics and Disability”
Posted in generalization of growth attenuation, information, tagged Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics, involuntary sterilization, University of Washington on September 18, 2009 | Comments Off
The University of Washington Disability Studies Program will present a public symposium, Eugenics and Disability: History and Legacy in Washington, on October 9th.
http://eugenics.washington.edu/index.htm
Browzing the sumposium site, I just find some things I’d like to point out here, though I’m sure (and I also hope) they are totally unrelated to the discussion at the symposium.
First, the [...]
The Seattle Children’s and the Gates Foundation are hand in hand as “global health leaders”
Posted in Ashley's father, Dr. Diekema's explanation, Money, generalization of growth attenuation, the special ethics committee, tagged Ashley treatment, ethics, bioethics, pillow angel, disabilities, disability rights, growth attenuation, hysterectomy, Ashley X, involuntary sterilization, breast bud removal, medical ethics on September 5, 2009 | Comments Off
According to this article of April 24, 2009 on the Medical News Today, the Seattle Children’s Hospital and the Gates foundation are hand in hand as “global health leaders” in an effort to eliminate prematurity and still births. The article is about a big international conference in Seattle, sponsored by the Global Alliance to Prevent [...]
The mystery of the definition of profound cognitive disability in the new growth attenuation paper
Posted in Dr. Diekema's explanation, The doctors' medical paper, generalization of growth attenuation, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, Dr. Diekema, ethics, ethics committee, growth attenuation, hysterectomy, involuntary sterilization, medical decision-making, medical ethics, mentally disabled, pillow angel, Seattle Children's on June 20, 2009 | Comments Off
In their paper published in the June issue of the Pediatrics, the authors define profound cognitive disability “as including nonambulation and requiring assistance with nearly every aspect of daily living, remaining completely dependent on others for even basic care after careful attempts at training, and the inability to understand or express oneself in nuanced ways”. [...]
The new growth attenuation paper by Dr. Diekema, Dr. Fost with others
Posted in Dr. Diekema's explanation, The doctors' medical paper, generalization of growth attenuation, the WPAS report, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, Dr. Diekema, ethics, ethics committee, ethics consultation, growth attenuation, hysterectomy, medical ethics, mentally disabled, pillow angel, Seattle Children's, University of Washington, WPAS on June 20, 2009 | Comments Off
I read the full text of the growth-attenuation paper written by Dr. Diekema and Dr. Fost with others in the June issue of the Pediatrics. So many questions and mysteries again. I will just point out some of them here for now. Some of the questions and mysteries will be reviewed more closely in my [...]
A new “public engagement” version of the hospital’s Ashley story
Posted in generalization of growth attenuation, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, ethics, growth attenuation, hysterectomy, involuntary sterilization, medical ethics, pillow angel on May 11, 2009 | Comments Off
The new January 2009 version of the Seattle Children’s Ashley story told by Dr. Wilfond at the beginning of the growth attenuation symposium goes like this; The public engagement. That’s what has been in our mind from the very beginning. That’s why the two doctors wrote the medical article. Ashley’s parents were kind enough to [...]
The damage the Ashley case has done and damages it can still do
Posted in generalization of growth attenuation, the media, the special ethics committee, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, ethics, growth attenuation, medical ethics, pillow angel on May 1, 2009 | Comments Off
I have been following the Ashley case for more than 2 years. I have been reading about other cases as well. Looking back on the Ashley case after so many cases of Emilio Gonzales, Ruben Navarro, Sam Golubchuk, Amber Hartland, Karen Weber, Lauren Richardson, Janet Rivera, David Coronado Jr., O.T. , Kaylee Wallace, Annie Farlow and [...]
The hospital promised no growth attenuation without court order in 2007
Posted in Dr. Diekema's explanation, generalization of growth attenuation, investigation, the WPAS report, tagged Ashley treatment, ethics, bioethics, desabilities, ethics committee, Ashley, Seattle Children's, University of Washington, pillow angel, WPAS, disability rights, growth attenuation, hysterectomy, Ashley X, involuntary sterilization, breast bud removal, mastectomy, medical ethics on January 31, 2009 | Comments Off
What follows is an excerpt from the WPAS investigative report on the Ashley case:
In order to ensure that a court order is obtained before a sterilization or growth-limiting medical intervention is preformed on an individual with a developmental disability, Children’s Hospital has entered into an agreement with WPAS to take the following steps:
A. Implementation of [...]
Ashley’s father’s plan to promote “the Ashley Treatment”
Posted in Ashley's father, Dr. Diekema's explanation, generalization of growth attenuation, information, tagged Ashley treatment, bioethics, ethics committee, Ashley, pillow angel, disabilities, disability rights, growth attenuation, Ashley X on January 30, 2009 | Comments Off
In the December 31, 2007 update of his blog, Ashley’s father revealed what he was considering to do to promote “the Ashley Treatment” for the quality of life of other Pillow Angels in the world.
・ He asks “pioneering parents” who want to do the same as they did to contact them through e-mail for information exchange. They are willing [...]
