I know Peter Singer’s assertion that children with profound mental disabilities are not entitled to “moral status”. I remember Dr. Diekema argued defending the Ashley case that Ashley is not entitled to the same dignity as others are because she is just like a baby. Now I’m shocked to read a paper written by a [...]
Archive for the ‘information’ Category
A legal article says that courts should take new standards and approve the “Ashley Treatment” because the therapy can be more important than non-person’s fundamental rights
Posted in Ashley's father, Dr. Diekema's explanation, generalization of growth attenuation, information, tagged Ashley treatment, ethics, bioethics, parental decision making, pillow angel, disabilities, disability rights, growth attenuation, hysterectomy, Ashley X, involuntary sterilization, Dr. Diekema, breast bud removal, mastectomy, medical ethics on October 10, 2009 | Comments Off
Links 9: CNN interview with the parents in 2008
Posted in information, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, Dr. Diekema, ethics, growth attenuation, Gunther, hysterectomy, involuntary sterilization, mastectomy, medical decision-making, medical ethics, parental decision making, pillow angel, Seattle Children's on October 2, 2009 | Comments Off
CNN stories
’Pillow angel’ parents answer CNN’s questions
CNN, March 12, 2008
Disabled girl’s parents defend growth-stunning treatment
CNN, March 12, 2008
Media stories
Parents: ‘Ashley treatment’ successful
UPI, March 12, 2008
Parents Defend Hysterectomy, Growth-Stunting of Disabled Girl
Fox News, March 13, 2008
Response from Ashley’s father
http://ashleytreatment.spaces.live.com/blog/cns!E25811FD0AF7C45C!1838.entry
The Ashley Treatment, March 12, 2008
Responses from transhumanists
Ashley X parents speak out and defend their actions
Sentient Developments, [...]
Growth attenuation therapy in Australia?
Posted in generalization of growth attenuation, information, tagged Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics, growth attenuation, medical ethics, pillow angel on October 1, 2009 | Comments Off
A law firm newsletter in Australia has done a detailed legal analysis on growth attenuation for disabled children because “there is anecdotal evidence that such requests by parents may be increasing.”
http://hwlebsworth.ensoconsultancy.com.au/health_sept09/growth-attenuation-therapy.html
They advise doctors to consider its ethical appropriateness cautiously and warn them not to agree to provide the therapy without the proper legal procedures to [...]
UW Disability Studies Program symposium “Eugenics and Disability”
Posted in generalization of growth attenuation, information, tagged Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics, involuntary sterilization, University of Washington on September 18, 2009 | Comments Off
The University of Washington Disability Studies Program will present a public symposium, Eugenics and Disability: History and Legacy in Washington, on October 9th.
http://eugenics.washington.edu/index.htm
Browzing the sumposium site, I just find some things I’d like to point out here, though I’m sure (and I also hope) they are totally unrelated to the discussion at the symposium.
First, the [...]
Links 8: Dr. Diekema’s lecture at Calvin College in January 2008
Posted in Dr. Diekema's explanation, information, tagged Ashley treatment, Ashley X, bioethics, breast bud, breast bud removal, Calvin University, Calvin University January Series, disabilities, disability rights, Dr. Diekema, ethics, growth attenuation, hysterectomy, involuntary sterilization, mastectomy, medical decision-making, medical ethics, pillow angel on September 14, 2009 | Comments Off
Dr. Diekema gave a lecture, “Live, Jusitce, & Humility: A Bioethicist Meets the ‘Pillow Angel’” at Calvin College, January 18, 2008.
The lecture page of the Calvin College site (RealAudio archive link included)
http://www.calvin.edu/january/2008/diekema.htm
Dr. Diekema’s Inner Campus TV interview at Calvin College after the lecture
(Find IC812 in the page. That will be Dr. D’s interview.)
http://www.calvin.edu/innercompass/icaudio_feed.xml
He spoke before [...]
Links 7: Norman Fost
Posted in information, tagged Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics, growth attenuation, medical ethics, pillow angel, Seattle Children's on June 8, 2009 | Comments Off
The series of Links posts will remain subject to corrections and additions any time.
Who is Norman Fost?
http://sportsanddrugs.procon.org/viewsource.asp?ID=7367
(Sports and Drugs, ProCon org. with his background details)
http://bioethics.seattlechildrens.org/events/pediatric_bioethics_conference/norman_fost_md_mph.asp
(Seattle Children’s site, speaker’s profile for 2009 Pediatrics Bioethics Conference)
Norman Fost in the Ashley case controversy
http://transcripts.cnn.com/TRANSCRIPTS/0701/12/lkl.01.html
(Larry King Live, January 12, 2007)
http://www.scientificamerican.com/article.cfm?id=the-pillow-angel-case–th
(ScientificAmerican.com, January 5, 2007)
Norman Fost at Pediatric Bioethics Conference of the [...]
Dr. Diekema and Dr. Fost wrote a new paper on growth attenuation
Posted in Dr. Diekema's explanation, The doctors' medical paper, information, tagged Ashley treatment, Ashley X, bioethics, disabilities, disability rights, Dr. Diekema, ethics, growth attenuation, medical ethics, pillow angel on June 6, 2009 | Comments Off
Dr. Diekema and Dr. Fost with others wrote a paper on growth attenuation in the June issue of the Pediatrics. Check this up.
http://pediatrics.aappublications.org/cgi/content/abstract/123/6/1556
Growth-Attenuation Therapy: Principles for Practice
Pediatrics Vol. 123 No.6 June 2009, pp. 1556-1561
Also see here for information about Dr. Fost. Actually there’s a lot more to know about him. More info will follow in future [...]
Links 6：Dr. Gunther’s suicide
Posted in information, tagged Ashley treatment, Ashley X, bioethics, breast bud removal, disabilities, disability rights, Dr. Gunther, Dr. Gunther's suicide, ethics, growth attenuation, hysterectomy, involuntary sterilization, medical ethics, pillow angel on May 12, 2009 | Comments Off
News articles
Oct. 10, 2007
http://seattlepi.nwsource.com/local/335019_gunther11.html?source=rss
(SP-I, the title says his death is “ruled a suicide”)
http://seattletimes.nwsource.com/html/localnews/2003940574_webgunther10m.html
(Seattle Times)
Oct.11
http://www.msnbc.msn.com/id/21225569/
(MSNBC)
http://seattletimes.nwsource.com/html/localnews/2003941272_gunther11m.html
(Seattle Times)
Oct. 12
http://dailyuw.com/2007/10/12/uw-doctor-commits-suicide-amid-pillow-angel/
(UW Daily)
http://www.usatoday.com/news/nation/2007-10-12-3043064843_x.htm
(AP)
Blog articles
http://www.sentientdevelopments.com/2007/10/ashley-x-doctor-commits-suicide.html
(Oct. 11: George Dvorsky, accusing disability rights advocates for his suicide)
http://notdeadyetnewscommentary.blogspot.com/2007/10/transhumanist-suggests-doctors-suicide.html
(Oct 12: Stephan Drake, reacting to Dvorsky)
Mysteries and questions surrounding the Katie Thorpe case
Posted in Ashley's father, Dr. Diekema's explanation, information, the media, tagged Alison Thorpe, Ashley treatment, Ashley X, bioethics, disabilities, disability rights, ethics, growth attenuation, hysterectomy, involuntary sterilization, Katie Thorpe, medical decision-making, medical ethics, mentally disabled, parental decision making, pillow angel, the Katie case on April 20, 2009 | Comments Off
Many people may think that the Katie Thorpe case in UK is an isolated episode, though it was strongly influenced by the preceding Ashley case. Many may also believe that Alison Thorpe, Katie’s mother appeared in the media for the first time in October 2007 when her request for Katie’s hysterectomy was reported. Actually, Alison had been [...]
Links 5：the Katie Thorpe case in UK
Posted in The doctors' medical paper, information, tagged Alison Thorpe, Ashley treatment, breast bud removal, disabilities, disability rights, ethics, growth attenuation, hysterectomy, involuntary sterilization, Katie Thorpe, medical decision-making, medical ethics, mentally disabled, parental decision making, pillow angel on April 8, 2009 | Comments Off
January, 2007: Alison Thorpe in the Ashley case
http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2007/01/06/nashley06.xml #
I want my girl to have the ‘Ashley Treatment’
The Telegraph, January 8, 2007
http://www.thisissouthend.co.uk/display.var.1113652.0.0.php #
If only we could have stopped our child growing up, as well
Echo, January 10, 2007
Octore 2007 : Alison Thorpe’s request for her daughter’s hysterectomy
October 7
http://www.timesonline.co.uk/tol/news/uk/health/article2603965.ece
http://www.timesonline.co.uk/tol/news/uk/health/article2604771.ece
http://www.dailymail.co.uk/news/article-486217/Why-I-want-surgeons-remove-disabled-daughters-womb.html ##
http://itn.co.uk/news/fb4df1157c5ed40c826a4b5e06e53411.html
http://news.bbc.co.uk/2/hi/health/7032736.stm
October 8
http://www.timesonline.co.uk/tol/news/uk/health/article2609442.ece
http://www.timesonline.co.uk/tol/life_and_style/health/article2610704.ece
http://www.telegraph.co.uk/comment/3643172/Let-disabled-Katie-Thorpe%27s-mother-decide.html
http://www.guardian.co.uk/news/2007/oct/08/medicineandhealth.uknews
http://www.thisislondon.co.uk/news/article-23415544- details/Why+I+want+surgeons+to+remove+my+disabled+daughter’s+womb/article.do
http://edition.cnn.com/2007/HEALTH/10/08/hysterectomy/index.html?imw=Y&iref=mpstoryemail
October 9 -13
http://www.telegraph.co.uk/news/uknews/1565509/Disabled-girl-to-have-womb-removed.html
http://www.dailymail.co.uk/femail/article-487155/The-humbling-true-story-mother-wants-disabled-daughter-womb-removed.html [...]
